A little information about our project!

I am gathering letters from kids whose parents/grandparents have Parkinson disease to hopefully put these together in a book about parkinson disease for kids by kids. This was my 8 yr old daughter's original concept to help her and other kids like her better cope with having a mom or dad with PD.

The concept is to ask kids of all ages from 3 yrs old through college age kids (about 25 yrs old) to write a letter to their mom/dad/grandpa/grandma about how they feel about Parkinson disease, how it affects their mom or dad or grandma or grandpa, how it affects them as a kid living with this disease and how they cope with it.

They can include the best things they love about their family member. You can help the younger ones by writing what they say and they can draw pictures if they wish. The letter should start Dear Mom or Dad or Grandpa or Grandma -- whichever fits. This disease affects the entire family and it can be very difficult for kids to understand what is going on with their family member who they love very much.

I hope this book will in some small way reach out to these kids and give them comfort in knowing there are other kids like them. Please send letters to jenyopd@yahoo.com and please provide consent from the parents for me to use these letters in the book. I hope you will send this to others who may wish to participate.